DNP 825 How are ethical considerations being addressed Essay
DNP 825 How are ethical considerations being addressed Essay
Read about the various considerations within the sections of
Answer the following questions:
How are ethical
considerations being addressed?
ethical issues can you think of that are not discussed on this page? List and
explain two issues.
Access the Informed
Consent section. How are ethical issues addressed on this form?
Other questions to be addressed:
How do you envision that genomics and personalized medicine
will change the landscape of health care?
Evaluate the complexity of the technical issues related to
managing and utilizing genomic data as discussed in chapter 24.
Without discrimination as the framework, preventive medicine
and wellness models may desire genetic testing in adults to identify genetic
diseases before they cause symptoms. Outline the considerations for the shifts
in health care delivery caused by personalized medicine including the
management of personalized data.
Write a 5 page paper using APA format to answer the
questions. Title page and reference page are not considered in the paper total
Ethical Issues in Research
There are many organizations, like the Committee on Publication Ethics, dedicated to promoting ethics in scientific research. These organizations agree that ethics is not an afterthought or side note to the research study. It is an integral aspect of research that needs to remain at the forefront of our work.
The research design must address specific research questions. Hence, the conclusions of the study must correlate to the questions posed and the results. Also, research ethics demands that the methods used must relate specifically to the research questions.
- Voluntary Participation and Consent
An individual should at no point feel any coercion to participate in a study. This includes any type of persuasion or deception in attempting to gain an individual’s trust.
Informed consent states that an individual must give their explicit consent to participate in the study. You can think of consent form as an agreement of trust between the researcher and the participants.
Sampling is the first step in research design. You will need to explain why you want a particular group of participants. You will have to explain why you left out certain people or groups. In addition, if your sample includes children or special needs individuals, you will have additional requirements to address like parental permission.
The third ethics principle of the Economic and Social Research Council (ESRC) states that: “The confidentiality of the information supplied by research subjects and the anonymity of respondents must be respected.” However, sometimes confidentiality is limited. For example, if a participant is at risk of harm, we must protect them. This might require releasing confidential information.
- Risk of Harm
We should do everything in our power to protect study participants. For this, we should focus on the risk to benefit ratio. If possible risks outweigh the benefits, then we should abandon or redesign the study. Risk of harm also requires us to measure the risk to benefit ratio as the study progresses.
- Research Methods
We know there are numerous research methods. However, when it comes to ethical considerations, some key questions can help us find the right approach for our studies.
i. Which methods most effectively fit the aims of your research?
ii. What are the strengths and restrictions of a particular method?
iii. Are there potential risks when using a particular research method?
For more guidance, you can refer to the ESRC Framework for Research Ethics.
Institutional Review Boards
The importance of ethics in research cannot be understated. Following ethical guidelines will ensure your study’s validity and promote its contribution to scientific study. On a personal level, you will strengthen your research and increase your opportunities to gain funding.
To address the need for ethical considerations, most institutions have their own Institutional Review Board (IRB). An IRB secures the safety of human participants and prevents violation of human rights. It reviews the research aims and methodologies to ensure ethical practices are followed. If a research design does not follow the set ethical guidelines, then the researcher will have to amend their study.
Applying for Ethical Approval
Applications for ethical approval will differ across institutions. Regardless, they focus on the benefits of your research and the risk to benefit ratio concerning participants. Therefore, you need to effectively address both in order to get ethical clearence.
It is vital that you make it clear that individuals are provided with sufficient information in order to make an informed decision on their participation. In addition, you need to demonstrate that the ethical issues of consent, risk of harm, and confidentiality are clearly defined.
- Benefits of the Study
You need to prove to the panel that your work is essential and will yield results that contribute to the scientific community. For this, you should demonstrate the following:
i. The conduct of research guarantees the quality and integrity of results.
ii. The research will be properly distributed.
iii. The aims of the research are clear and the methodology is appropriate.
Integrity and transparency are vital in the research. Ethics committees expect you to share any actual or potential conflicts of interest that could affect your work. In addition, you have to be honest and transparent throughout the approval process and the research process.
The Dangers of Unethical Practices
There is a reason to follow ethical guidelines. Without these guidelines, our research will suffer. Moreover, more importantly, people could suffer.
The following are just two examples of infamous cases of unethical research practices that demonstrate the importance of adhering to ethical standards:
- The Stanford Prison Experiment (1971) aimed to investigate the psychological effects of power using the relationship between prisoners and prison officers. Those assigned the role of “prison officers” embraced measures that exposed “prisoners” to psychological and physical harm. In this case, there was voluntary participation. However, there was disregard for welfare of the participants.
- Recently, Chinese scientist He Jiankui announced his work on genetically edited babies. Over 100 Chinese scientists denounced this research, calling it “crazy” and “shocking and unacceptable.” This research shows a troubling attitude of “do first, debate later” and a disregard for the ethical concerns of manipulating the human body Wang Yuedan, a professor of immunology at Peking University, calls this “an ethics disaster for the world” and demands strict punishments for this type of ethics violation.
What are your experiences with research ethics? How have you developed an ethical approach to research design? Please share your thoughts with us in the comments section below.